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Report I Have Just Done For Sons Assessment. Am I On The Right Track And Giving The Right Information?

autism special needs learning dificulties ADHD diagnosis

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#1 SammyCxxx

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Posted 01 June 2014 - 10:04 PM

FROM BIRTH
Lucas had a normal birth. He was not breathing immediately and I remember an alarm going off and lots of people run in to help clear his airways. I can't remember how long it took but don't think it was to long. He was fine after and no more complications.
Lucas started crawling at 11 months and walked at 16 months. I was a little concerned about him not speaking and babbling a lot at 2-3 years old.
 
NURSERY
Ever since my son was about 3, I started picking up on the first signs that something was a little different and so did his nursery. Autism or anything like that did not even enter my head at this time especially because i knew absolutely nothing about it. The first things at this age was his delayed speaking and speech which resulted in speech and language sessions. He tends to stutter at the beginning of a sentence and he also used to ignore me a lot when I called him. Not all the time but most. I would have to call him multiple times to get his attention. He was also really sensitive to loud noises and would always cover his ears and this is still something he still does now. This resulted in me getting his hearing, tested which came back perfect so I put it down to selective hearing maybe?.
 
Potty training was also a long and difficult process. I thought he was going to go to school in nappies because he was so difficult to train. 
Just before he started nursery they discharged him from speech and language at the hospital and said they where pleased with how he was progressing and that his speech would catch up quickly in his school environment.
 
After being at nursery for a few months the teachers also picked up on a few thing. I can't remember what things they were now but it was his concentration among other things. They where going to refer him to SENCO for an assessment, but it was so close to the end of the year that it never happened, because he didn't get into that school. His attention span is and was really poor, especially in large groups.
 
SCHOOL
Anyway, when he started his new school in Reception, things seemed to be going well. Apart from the not listening and rough play but that's just boys right? Also, Reception is mainly play based and the children are young so he got on ok as I remember and to my knowledge. He then moved into Year 1 where it is still very play based but more work is incorporated. Again his ability to pay attention and follow instructions became more noticeable with age. Flickering his attention from one activity to the next quite quickly. Sitting still is also an effort for him and the constant fiddling. This is the year that he started to fall behind with his reading and writing. He would get really upset when made to do either of these at school or at home. They said its the physical time and effort it takes that he struggles with because it requires concentration which is a real difficult point for him. I also started to worry alot towards the end of this year because I knew Year 2 would be a big change for him, with sitting round tables and working for the best part of every day. I knew how much he was going to struggle with that transition. I raised my concerns about this with the school as Lucas had already slipped behind and was struggling in his learning at this point. The teachers agreed and he was offered a place in The Base, which is a class of 6-7 children with similar difficulties and specialist teachers. He was also referred by the school for and Autism test. I was shocked at this because until they said it, I had never thought about it. I thought maybe dyslexia, ADHD or just a learning difficulty but his teachers believe he is on the Autism Spectrum. 
 
He was assessed by a doctor who concluded that he didn't believe he was on the spectrum. I was relieved a little at the time but did feel he barely took much notice of my son or me and that he was more interested in the 2 students in the room that he was teaching and asking questions to. I felt like we were spectators in his lesson if I am honest. Even thou I was relieved I was still left in limbo with no answers and still no understanding of why my son is struggling so much?, or why he behaves the way he does sometimes? or why he says an does the things he does? 
 
I have spent endless hours looking for answers and after much research on my part, I do strongly believe that my son is on the Autism Spectrum.
 
CURRENT
My son is now 7 years old and in Year 2. He is no longer in a mainstream class at his school. He is in a smaller class with specialist teachers. He finds it hard, and every day is a challenge for him, but is progressing slowly. He is still a year behind but I am pleased with his progress. I am 100% sure this is only down to the extra care and attention that he receives in the BASE and that he would not make the same progress if he was still in a mainstream class. He needs constant visual reminders to pay attention and reminders of class rules. We have also had a few incidences with other children now he is getting older. He can make friends and play with other children but struggles to maintain friendships. Other children struggle to play with him because he wants everyone to do what he wants and can't understand or relate if they want to do other things. He can be very bossy and wants everything on his terms and his way. He would rather play alone than join in someone else's choice of game. 
 
I recently went and sat in on one of Lucas,s lessons at school and it was a real eye opener for me and it did take me back abit on how Lucas,s behaviour an struggles are alot more noticeable and different at school to at home. I feel like I have adapted to Lucas and don't notice thing as much because to me, he's just himself, my son.
 
He loves his Xbox computer at home and he will talk excessively about computer games he likes. He will cut conversations off to switch to what he wants to talk about. Lego games in-particular. I cut his computer time down to a minimum but don't want to stop it completely because it's something he enjoys. He pays attention if he is interested in the subject thats being discussed but if its not he struggles to maintain focus.
 
He is the most loving, funny and active little boy. His language is now advanced for his age and his is really well spoken. He doesn't sound like me at all. He still stutters at the beginning of sentences and tends to talk really fast. I think that is why he stutters alot. I feel like he struggles to get his words out as fast as his brain wants him to. I have to stop him and tell him to calm down and say it again so I can understand. A few letter sounds are still absent, but apart from that his language communication is great. 
Lucas is also highly competitive. As much as it can be a strong point it also a major problem for him when playing with other children because he hates to lose and other people win. He has even told teachers at school that he would rather not join in and play a game at all than lose. He finds it hard to deal with and gets very frustrated. Tears and tantrums. We are trying to work on this with him. 
 
I feel like I could write so much more. He also has sensory issues and motor skills that I haven't mentioned.
 
SENSORY ISSUES
 
Eg: When in a situation where he feels anxious or uncomfortable (especially when we are out or I introduce him to people)  he will grab and cling 2 my arm + keeps kissing my arm or hand and jump on me in a playful manner repeatedly. 
He also still has a comfort blanket that he sleeps with. There is a certain part that he fiddles with to sleep. Lucas has night terrors sometimes. They are getting less frequent at the moment thou. It is upsetting for him and me and can take me a good hour or so sometimes to ease him and calm him down. Luckily he never remembers them in the morning because he is still asleep in them.
 
When his sister eats any kind of cheese near him (especially cheesy crisps). He will have a massive meltdown and leave the room. If she has anything to do with cheese on her plate he refuses to sit at the table with her at all. 
 
When he gets upset or told off he will hit himself in the head or face in frustration. I believe he does this at school aswell. 
 
He still covers his ears and is very sensitive to loud noises.
 

MEMORY

Lucas is very sensitive to things and hangs on to thing and memory's that affect him.

one example is:  On 2 separate occasions quite far apart I found him crying for no reason at all. Really sobbing inconsolably.  When I asked him what was wrong both times

"It was about a Mr Bean episode that he watched 6-9 months previous (where the baby had rolled down the hill in the pushchair and he was chasing it). 

Also when Lucas was about 4 I took him to the Belgrade theatre to see the Number Jacks. He loved them on the TV and really wanted to go. As soon as we walked into the theatre he was uneasy. Even before it started, just sitting in that large room with people. Anyway, when the show started he just freaked out and had a meltdown at the people that were dressed up. They were quite far away from us and never came close.

So there was a school trip at the beginning of this year at the theatre to see Room on the Broom. Lucas point blank refused to even discuss it with myself or any of his teachers and refused to go at all.

MOTOR SKILLS

Lucas is still very dependant on me at home.  I still help get Lucas dressed as it is something he struggles and gets very frustrated with. He cannot do his zips, buttons or laces. I also help him brush is teeth as he struggles with the motion. When coming to cutting up food with a knife and fork, again this is something I have to do for him as he cannot. 

 


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#2 Eggman

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Posted 02 June 2014 - 09:25 AM

Hi there. You've done really well at describing his difficulties there.

 

Again he sounds so much like my son!

 

Good luck with the assessment and let us know how it goes.

 

Maybe put a date on the report as you'll be surprised how much paperwork gets created along the way and perhaps some sort of heading for the report.



#3 Huwbert

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Posted 02 June 2014 - 03:59 PM

Good luck - there's lots of useful information in your report.

Keep in touch with how you both get on with this
 

HUW x



#4 SammyCxxx

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Posted 03 June 2014 - 09:12 AM

Thankyou for your replies. No he hasn't been officially diagnosed yet. I have been adding more things as I go to the report. I got upset again last night reading it back to myself. Not because of Lucas or the the things he does but the fact that I feel like I have just written a letter pointing out every little negative and quirk and all his struggles. I am very anxious about the assessment as like his teacher has said, it will determine alot about his future education. I don't like the thought of letting the assessor read it and that is then all they see. It is only a small part of who he is. He is so much more and I wouldn't change a thing about him. (Maybe his listening thou lol). He really is a clever, funny, loving and happy little boy. I know I am just being silly and his SENCO co-ordinator has been noting but reassuring. I know this is what needs to be done to provide him with help and support he will need in the future.

#5 Eggman

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Posted 03 June 2014 - 12:06 PM

Loads of (((hugs))) it is really tough when you see it all written out in black and white like that.

 

I've had to drag out all past reports on LE over the last couple of months as we are coming up to getting him into the right senior school and it's depressing reading but it's not who he is it's just what he finds difficult.

 

The paperwork then all gets a filed away again and forgotten about until the next time I have to drag it out again. It doesn't really get any easier having to do that.

 

Sounds like your SENCO is being really supportive so that's good.







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