Assessment Date Came Through.
Posted 22 June 2016 - 09:49 PM
Posted 24 June 2016 - 09:34 PM
I think today went OK. dd had height, weight, reflexes etc tested, then 10 min conversation based on ADOS-2 booklet. Afterwards, the paediatrician said she'd done well - no idea what that actually means, but dd sat, answered most questions, looked at him, didn't fidget too much, etc (something she had absolutely not done with visitors the previous weekend!). However, she's also been referred to SALT as well, and that could be months in our area. SALT and paediatrician then meet and make a joint decision. So it another wait...
Posted 02 November 2016 - 10:37 PM
We were at the hospital today for allergy test for dd, and happened to bump into our paediatrician. He was very nice, and apologised for us not hearing from speech and language yet. It seems that shortly he referred dd, SALT was off long term sick, and then left. It could be next summer...
Posted 04 November 2016 - 09:08 PM
We have our second paediatrician app for l on Monday. Not sure what that'll bring, if they've gathered enough information to go any further or not, or know school sent a report haven't seen it but not convinced it'll have any helpful info as he is managing well at school at the moment. His anxieties are pretty low at the moment Aswell as I'm off work at moment so I'm at home with him 24 /7 which seems to be helping.
I know it's not a quick fix but at least I'll know if there willing to assess or if he is to go down the CAMHS route. X
Posted 07 November 2016 - 08:15 PM
If they then say different then the paediatrician has no info to go on so they will have to look at other things rather than the Asd route.
I'm really doubting myself again, she said that if it is Asd then it's mild and probably why the school can't see it.
I'm beginning to think that I'm seeing things in his behaviour or looking for things that obvisouly not there.
If it's just traits then we'll just have to manage this I guess. X
Posted 08 November 2016 - 09:47 PM
I sometimes think I'm over sensitive with dd. However, we have been through such difficult times with ds1. When he got to high school, the fact he already had a diagnosis helped immensely, and we think it's important to know for dd.
I hope the wait is not too long.
Posted 09 November 2016 - 01:38 PM
I see so many traits but that may be all they are as the peadetrition said she can't dx but if it is Asd then it might be on the lesser side so not as easily recognised.
I see something in my DS too who's 5 but not sure what, she's hypersensitive to things like noise, clothing and is oral sensitive especially when anxious. She chews and sucks on things. She almost eats her hand when anxious. And she's Aiken to wanting to suck my fingers at night (strange I know lol)
She suffers anxiety especially socially, does not like to be away from me for any length off time, struggles with school. Enjoys school but becomes anxious and emotional if she thinks her friend won't be their, sometimes on the bus and eating at lunch I have to reassure her every morning. She didn't eat at school for the first few weeks and now only eats minimal. She won't eat at parties or other events like that.
She is a very emotional girl and regularly has emotional meltdowns over the little things.
She does seem sociable though and plays imaginatively with her dolls and things??
I know what you man about being overly sensitive, looking at things and wondering what if? X
Posted 10 November 2016 - 01:22 PM
Our local team monitored for 8 years and kept insisting that his ASD traits were so mild he would not meet the criteria for a DX. It's now accepted that he has severe autism. What matters more than an exact agreed DX is how well he is coping and what help he needs. If he gets the rights support then the DX is not needed.
It's frustrating that parents difficulties with a child are ignored when the cause of much of the difficulty at home is how they cope with school. However there is a lot of poor behaviour in school caused by poor parenting, and it can be difficult to separate the cause. It irks me that I have been accused of spoiling my son when I can get him to do far more than school could without bribes. the breakthrough for us came when CAMHS supported our view that poor behaviour at school was impacting home, and not vice versa based on what they saw when he was with me, and reports of what he did in school.
Trust your judgement and keep pushing for what you think your children need to cope.
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