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Asd Pathway Advice


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#1 littlewren

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Posted 06 February 2015 - 05:06 PM

Hi,

 

I was wondering whether anyone can point me in the direction of information regarding the pathway. I know each authority has their own strategy so it may be fruitless.

 

I am asking because my son was supposedly put on the asd pathway last may, but it looks like someone somewhere forgot to actually send off the paperwork. Apparently I should have received some sort of confirmation on it happening which I didn't. He technically should of had his ados around this time so the pediatrician is hoping to get it back dated. I am a bit confused about it all really that's why I want to look into what should have been done and when.

 

Thanks in advance



#2 Kadenza

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Posted 06 February 2015 - 08:45 PM

Hi Littlewren,

Our route was:

1) Concerns raised at nursery school
2) Outreach workers advised further investigation
3) Assessment with Speech & Language therapist who referred to
4) Paediatrician, who diagnosed ASD (Aspergers)

Remarkably straightforward. Except that the AS dx really didn't sit well with us, and when PDA was mentioned to us about three years later, we knew that was the right diagnosis. At the time no-one in Surrey could dx PDA, so we had to pay for a private assessment, but as it was with the leading PDA specialist in the UK, it was definitely worth it!

So concerns raised at 3 1/2 years, original dx at 4 years, final dx (I hope) at 7 years.

#3 littlewren

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Posted 06 February 2015 - 09:51 PM

Hi thanks for that. I think the main confusion is that she said she was going to contact the county council which sounded strange to me. We have bypassed the school which is why things are taking longer due to the school not accepting there could be an issue. 

 

Its interesting you mentioned PDA the pediatrician has flagged up it being a social communication disorder possibly asd but the more I read on PDA the more it seems relevant to my son. The problem is Harry isnt a 'tick all the boxes' child ultimately I see use being told he has traits rather than any definitive diagnosis.



#4 maximus prime

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Posted 07 February 2015 - 08:20 AM

For Jack

referred to speech therapist who referred to paed

paed ordered multidisciplinary assessment so SALT, OT, Psychologist and referred to education.

diagnosis given and statement started

So referred at 2.5 and diagnosed 7 months later

 

For Lucy

GP referred to paed who ordered chromosome and metabolic disorder screening once confirmed clear ordered multidisciplinary assessment and referred to education

diagnosis given and statement started

So referred at 17 months and diagnosed week after second birthday

 

I raised concerns each time as they weren't in nursery or pre school



#5 littlewren

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Posted 07 February 2015 - 01:41 PM

Thank you for that, very interesting. :)



#6 Tangled

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Posted 09 February 2015 - 06:55 PM

Hi

I can'y help with the pathway as for us assessments were done by CAMHS but the wait was so long we decided to go private. We got a diagnosis of ASD - fitting Asperger's originally and they said a lot of the things were very subtle but it all added up to warranting a diagnosis. We found once anxiety was treated though more PDA traits came to the fore and his Psychiatirst has added to his diagnosis, saying he probably sits between the 2 (Asperger's and PDA). As he gets older PDA is coming out stronger more and more.

Just thought it might be useful for you to know what other people have experienced diagnosis wise xx

#7 littlewren

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Posted 10 February 2015 - 03:04 PM

Thank you I really appreciate everyone taking the time to give me some information.

 

Because we have no school input I think it's become organised chaos lol We seem to have missed out 'steps' that would have come if we had school consensus. 


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