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Referred To Paediatric Specialist?


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#1 tracky2

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Posted 07 December 2015 - 03:41 PM

Hi guys,

Just received a letter today that L has been referred and put on the waiting list to see a specialist dr in the community paediatrics team within our local hospital. Just wondering if this was the way any of you started your journey.

I originally thought my was going to refer L to camhs to begin with, do you think this is a better route?

And as I am so new to this how long will this take I am aware that waiting lists are really long and can take months, is their anything I should be doing mean time?

Guess it's just a waiting game huh?

#2 caci

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Posted 07 December 2015 - 04:42 PM

In our area, diagnosis is carried out by CAMHS.

 

 I suggest you ring after a month or so to check you are in the right queue, and get an indication of when you should get an appointment date.

 

(Don't make the same mistake as me, I waited about 9 months before checking, only to be told we had been waiting in the wrong queue !)



#3 tracky2

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Posted 08 December 2015 - 12:03 AM

Hi Caci I'm a little confused.
What do you mean by wrong queue? What other things could he be in line for? I thought the paediatric teams were for specific referrals?

#4 caci

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Posted 08 December 2015 - 06:43 AM

What happened to us was we live a couple of miles from our GP. We pay our council tax to the same authority as the school is in, but the GP is in a neighbouring authority. 

 

The referral to CAMHS was made by the school, and they passed it to the team for that area, but, apparently it should have gone to the team who cover where our GP is based.

 

Apparently CAMHS is based on your PCT (GP) area and not where you live or go to school.

 

I don't know if referrals for other services are split up like this, but the moral of this story is if you are waiting for an appointment,  always check your details have been received by the correct person, and that you will eventually be seen.



#5 tracky2

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Posted 08 December 2015 - 10:12 AM

Wow that sounds awfully comlpicated Caci and to be honest i would be wrong if i said i knew either way how things are done down by us.

I think going by the back of the letter we received that the specialist we have been referred to is the specialist for our area as there at least another 3 that are from other areas and then there is non specialised child practioners who seem to take on other referrels if that makes any sense.

 

When I got the letter a looked up the name of the specialised we have been referred to.

 

I will take your advise however and call to check in a few weeks, that way i'll feel better.  From what i am reading this is only the first hurdle and a reletivly easy one at that.  Oh well here's to the start of our journey.  i guess the only thing thats on the back of my mind is have I done the right thing, and will somebody even see what i see?



#6 Eggman

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Posted 17 December 2015 - 10:14 PM

I can only tell you what happened with us although doubt it's changed that much. My son was diagnosed with autism 5 years ago.

 

Although our CP was crap, on the whole I would much rather be diagnosed by a CP or other professional that by CAHMS who in my experience can't even manage their admin properly never mind the complicated diagnosis of a child with ASD.

 

My son was referred to a Paed at 3 years of age who diagnosed him with a social communication disorder and although was lovely and very good didn't refer our son to a Clinical Psychologist for an ASD assessment until he was 7 years of age.

 

I knew from a very early age that my son had autism so it was extremely frustrating for me. My husband on the other hand had his head buried firmly in the ground and wouldn't accept it so we spent the next 4 years just waiting around with no support and no diagnosis they were very dark days for me.

 

If you find yourself in a position that you know your child has autism, trust your instincts and push for a diagnosis. I know for a fact if we would have pushed harder we would have had our diagnosis much earlier and my son would have been receiving support much earlier too.



#7 imperfect parent

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Posted 18 December 2015 - 09:49 PM

CAMHS in our area don't diagnose; we have a multidisciplinary team , but have to get past the community paediatrician to get to them.  Neither of my boys got a dx in county.  Our eldest has a diagnosis of Aspergers and is described as having severe autism by CAMHS recently.  It is a nightmare negotiating the process so my suggestion is find other parents in your area to talk to for local tips.



#8 tracky2

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Posted 19 December 2015 - 01:20 PM

Thanks guys, sorry haven't replied for some reason my account was suspended?

 

No idea why?

 

It seems that from the two people I know they have went down the same root as me, CAMHS werent very good in helping one family reach there dx.

 

It seems to depend on your area who from the peadiatric team you get to assess your wee one.

 

It's the wait....

 

So I'm just putting it out my mind, what will be will be until then.

 

Although my little guy as been rather moody of late, never looked at it before but wondering if its the christmas hype.  Hes close to tears most of the time and seems to be intolerent of his sister and taking us even more literal of late.

 

Humour not visible in our house for him .... poor wee man its suppost to be fun. 



#9 caci

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Posted 19 December 2015 - 03:57 PM

Tracky, the whole site was suspended for a few days, not just your account.



#10 tracky2

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Posted 19 December 2015 - 04:01 PM

Yeah i thought that actually Caci, since i knew my content was fine, or should i say hoped...

 

Glad its up and running again  :)






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