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Now Talking Dcd, So Confused


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#1 tracky2

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Posted 24 March 2016 - 05:49 PM

Hi guys, 

 

Just came from a meeting with the Learning Support teacher at our school.  We had an appointment with her to discuss L because as he was experiencing anxiety around going to school.  At our parents night the teacher expressed a concern that he was displaying anxious behaviour over a two week period so requested the help of Learning support.

 

The meeting ended up a combination of positive and confusing.

They are now looking at DCD which on researching doesn't really cover L's issues or at least in my view.  he doesn't have fine motor issues as he can draw well and complete Lego really well or any construction thing, his Gross motor is more delayed he cant swim yet or ride a bike with confidence and his ball skills are hit or miss, although he is only 7 and has no interest in Sport.

i do not observe him to be clumsy and he can hop jump etc., he hit all his normal milestones and was walking at 13 months.

DCD doesn't seem to fit L's high level of anxiety, sensitivity to texture in all areas, social awkwardness and lack of humour or complete honesty in every situation.

 

Has any body had any experience with a DX of DCD? maybe along with ASD DX?

 

I'm so confused now, apparently they have asked for an assessment of O.T although that could take at least 6 weeks for them to even make the first phone call.

Why does everything take so long, I get there are waiting lists but really everything takes months just to get started with a letter.

 

Although the referral can only be positive I'm thinking because it may speed up the process of getting a diagnosis whatever the outcome may be.  They haver also included him in a nurture group which will give them time to assess him  in other situations another positive.  She took a pretty detailed assessment of background etc which seemed to lead them to think DCD.  Although at one point she did ask if i had researched anything on the internet, not sure what she meant by this question?  What I explained Logan displayed at different times in his life. Guess she just wanted to know what I was thinking, i said i thought ASD. She did at one point say that DCD may have a lot of strong ASD traits.

 

There appears to be so much of a cross over with all of things on the spectrum, I just don't know what I'm looking at any more.

  

I'm so confused and a little disheartened as I had to push them to look at an action plan for L apparently because he doesn't show hardly any symptoms of anything at school they do not require any strategies written down, although I don't know how that is possible when I told them how he said ' he was anxious because he didn't understand what was happening when he was at school, that when he was a home he said he knew because we told him what was going to happen' surely there should be strategies for that.

 

i explained my fear being he would end up becoming too anxious due to other teachers etc.. not being aware of any of the issues he experiences with change in routine, listening and concentration.  Although I think the chances of any progress with this are slim, I had to really push for her to ask if they could look at it as a tool for Logan. 

 

The Learning support teacher did say that she thought they wouldn't really be able to do anything for L in school as he appears to be managing. Again don't know how that is? surely they need to address the things they are seeing that are leading them too think its DCD?

 

the one thing they did however say is he has a really good teacher that may be supporting him through the school day without realising that she is doing it i.e. letting him know what is happening next, she's already gave him ear defenders to wear helping him complete his work quicker without distraction.  i can not fault the teacher we have at the moment, my fear is that this will change after the summer.

 

So frustrating as I am the one experiencing all his anxieties out with school, probably about school.  for two weeks their he was experiencing stomach aches and tearful every morning about going to school.

 

Sorry if this seems a bit disjointed, I'm feeling a bit naff about all of this at the moment  :unsure:

 

Tx

 


#2 apricot

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Posted 24 March 2016 - 10:12 PM

DS has both DCD and ASD. Quite common to have both. OT input was great. OT won't just look at movement, should also look at the sensory side. Of all the inputs DS had, the OT was the one that was most useful. So definitely the right way to go. I found it helpful to think of it as a general problem with sequencing. If you have weak sequencing skills then you will have trouble with patterns of movement (diagnosis DCD) and trouble with planning/predicting what will happen (diagnosis ASD).



#3 tracky2

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Posted 25 March 2016 - 09:30 AM

Thanks apricot, the LSTeacher seemed to think it was all relevant to DCD so wasn't really looking at other reasons for the parts I didn't think fitted, I know there's an overlap especially within the spectrum so it might possibly be DCD. I'm just not convinced as he has really good fine motor skills, he's a wizard at Lego as its his thing. If anything he's a bit stilted with his gross motor skills but I wouldn't say he was clumsy. He doesn't usually drop things or fall over, though I wouldn't say he is as fit as he should be.

How did you get the diagnosis of both for your DS? Will the O.T be able to make the judgement?

Tx

#4 apricot

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Posted 25 March 2016 - 11:35 AM

Speech therapist referred us to paediatrician who diagnosed ASD. OT diagnosed DCD.

DS is also very good at lego, so being good at lego does not preclude DCD.

DS couldn't walk in a straight line, he would walk across the classroom leaving a trail of destruction in his wake having collided with door frames, tables, chair backs and people en route. He was continually in trouble for bad behaviour when there was an actual physical problem. If your lad does have DCD, the OT should be able to diagnose it and recommend treatment/classroom adaptations/exercises. Once the DCD strategies are in place, his difficulties may disappear or it may become clearer that there is something else going on.

In some ways DCD was a more useful label as his school seemed to 'get' physical issues, they never really got the ASD side.



#5 tracky2

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Posted 25 March 2016 - 01:46 PM

We have a referral in to the specialist peadetrition in our area from our own doctor for his high anxiety which can be general about stormy weather the dark etc but most concerning his high anxiety with change. Holidays etc have proven difficult for L resulting in physical symptoms. Is anxiety related to DCD in your boy?

His literal thinking and honesty with people aswell as having difficulty interpreting social cues, I suppose could also be DCD? You mentioned the O.T looking at sensory stuff too. Hopeful that'll help L as he has always had difficulty with texture of clothing, very fussy eater, problems with temperature, L hates being too warm and sleeping issues.

The problem we are having with school is them wondering what they can do for L in school as he manages, I feel it's because the teacher manages him. Aparently he needs no written strategies. However they have agreed to put him on the action plan at school, something similar to an ISP that will help. Don't get me wrong I'm glad he does mange but I had two weeks there where he was showing anxiety with going to school, the class teacher also commented he was showing it in class too and needed consent reassuring.

Guess I just have to wait and see what the O.T says x

#6 Eggman

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Posted 25 March 2016 - 05:23 PM

Hi there my son has both ASD and DCD. He was diagnosed with Communication Disorder at 3 years of age and then later at 7 with ASD by a Clinical Psychologist. Somewhere inbetween he was diagnosed with DCD by an OT.

 

Do you feel the teacher is trying to say he has DCD and not ASD? A teacher is not qualified to make such assumptions and from what you have said it sounds to me more ASD than DCD.

 

My son has great difficulty (still does but not as severe) with any fine motor skills. He could not fit lego together etc and has only just (he's 12 now) learned to do his first knot with Scouts. This is a huge step forward for him. His Fine and Gross motor skills however are still very weak. He also has quite severe sensory issues.

 

I wouldn't let a diagnosis of DCD get in the way of a diagnosis of ASD. It sounds more ASD based than DCD to me but obviously you will be seeing a specialist who will be able to tell you one way or the other. Still push for that ASD diagnosis though as you can then force (if you have to) the school to support you son more.

 

From the sounds of it he definitely needs support with change of routine that type of thing.






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