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New To Asd Friendly - And All Things Asd Related


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#1 nellie_needs

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Posted 24 February 2015 - 11:08 PM

Hi to everyone 

 

I am a mum of two great kids, who is constantly trying to juggle :juggle:  being a full-time Mum and full-time Project Manager with a daily commute to London and the occasional escape to socialise with friends or steal some quality ME TIME to do things such as get a hair cut!

 

I had been thinking about starting to plan for my 40th which is over a year away - anyone else find themselves planning things earlier, the busier they get :byebye: -  when we were told that our Son "LB" likely has ASD (Aspergers) & ADHD and his school advised us that they would start informal exclusions going forward with an ongoing review to see if the school were right for him - since then all our focus and energy has been spent on trying to find out more about ASD, the support available and our rights with the school.

 

My husband is a great support in helping raise our 2 kids. 

 

My Son "LB" is 5 years old, and in Reception at an Independent school. He wants to be a Doctor of Science when he grows up, is fascinated by Space & building rockets. He loves nothing more than Show and Tell, and being able to tell other people about the facts that knows. More recently has has decided to give up school for Lent!

 

We always thought of him as being very determined and wanting everyone to play by his rules, however never really thought much of it - it was only when he started at school and we had almost daily incidents of him biting / hitting other boys that we started to realise that something was not quite right. 

 

My daughter "Bean" is 2 years old, and is already in training to be a Diva. Who knew that a love of bags, shoes, dresses and jewellery starts at such an early age. 

 

My escapes from reality often involve potting about in my garden or heading out with my camera, whilst my daily commute gives me a chance to read through the many books that have been downloaded to my Kindle. 

 

That's us in a nutshell!



#2 caci

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Posted 25 February 2015 - 06:10 AM

Hello and welcome  :welcome:



#3 Tangled

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Posted 25 February 2015 - 08:08 AM

Hi and welcome xx

#4 Eggman

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Posted 25 February 2015 - 08:08 AM

Hi there and welcome.

 

Just seen your post about the EHC Assessment (think it was your post!).

 

You mention about the incidents at school. Would school write a statement in support of your request for an assessment. I know you said they know nothing about the process but they could be supportive in other ways.



#5 nellie_needs

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Posted 25 February 2015 - 05:49 PM

Hi Eggman - yes that was me asking about the EHC Assessment.

 

I believe that the school will be willing to provide a statement of support in our request as they are logging the behavioural issues currently happening, and we have also asked someone from the PRU to come in once a week to work with our son - so they should also be able to provide a statement of the behaviour they have observed. 

 

I am assuming from your post that this would help us, I wasn't sure how much the Local Authority would take that into account as they were not professionals.  



#6 Eggman

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Posted 25 February 2015 - 05:53 PM

They should take notice of what the school says. See it as gathering evidence.


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#7 mad cat lady

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Posted 25 February 2015 - 09:41 PM

One phrase you used struck some warning bells - you said that the school are going to start ' informal exclusions' , my advice would be not to accept this, my son's school used to phone us up and say ' J is not coping today can you pick him up' or 'J finds the last day of term difficult and we don't do much, maybe you want to keep him home' - we thought we were doing the right thing by complyng every time but what it actually meant was there was no paper trail of his difficulties.
If the school want to exclude him insist it be a formal exclusion, the LEA will not be able to refute this type of evidence. If a school are going to the lengths of excluding a child then they obviously can not meet his needs.
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#8 nellie_needs

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Posted 27 February 2015 - 12:00 AM

thank you so much for the advice. We have not yet had a phone call yet to come collect him, despite them telling us 2 weeks ago that they will expect us to start collecting him if he has a difficult day. We are all on edge waiting for the phone call. 

 

Based on you post, I will make sure we ask for written reasons if they do call us so that we have the evidence that they can't cope. 

 

Thank you. 



#9 bigmuma

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Posted 27 February 2015 - 06:51 PM

Welcome to you! I notice that you live in Beaconsfield. I also live in South Bucks, not far away. Which school are you at? I am also a teacher in a private school and know the local schools quite well. To be honest, we actually found the state far more helpful for our boys. If I can help in any way, please let me know.

#10 Jolly Roger

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Posted 28 February 2015 - 10:57 PM

I identify with people who are facing the harsh reality of trying to have it all: maintaining their career; keeping their social life on the boil; not compromising their support for their children; learning the hard way that you have to become a legal expert and a legal advocate as well...

 

A decade of sleep deprivation brought my career to an early end, but a medical pension and a great part time job in adult disability services means that I lost less when it hit the fan than I could have done. My wife, the delicious MissMac, is an assistant head teacher and wannabe novelist; our eldest and youngest children are thriving in an independent school in North Yorkshire (yes, that one) dealing with UCAS and Common Entrance respectively, and our middle boy knows everything that there is to know about Thomas the Tank Engine, Lego, Penguins, Lego, Planets, Penguins, Thomas the Tank Engine, Penguins, Lego, Steam Trains, Penguins, Planets, Lego, Thomas the Tank Engine and the current service level provided by Virgin Fibre Optic Broadband.

 

Welcome aboard the roller coaster.



#11 nellie_needs

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Posted 01 March 2015 - 05:55 PM

@Bigmuma - thanks for the for post. We are currently looking into other schools - do you have any recommendations for schools that would be good for us to consider in this area?

 

@Jolly Roger - thanks for the welcome



#12 bigmuma

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Posted 01 March 2015 - 08:51 PM

If you want to stay in independent then I would recommend Claire's Court in Maidenhead. For State, my eldest who has aspergers, was really happy at Chalfont St Giles ant then for secondary he went to Bourne End Academy, which has an ASD unit attached.

#13 nellie_needs

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Posted 02 March 2015 - 11:01 PM

@bigmuma: thanks for the advice





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