Jump to content


Photo

Camhs


  • Please log in to reply
8 replies to this topic

#1 bluewater

bluewater

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 328 posts
  • Gender:Female
  • Location:Scotland
  • Interests:Outdoor activities

Posted 22 August 2016 - 10:09 AM

ds1 was placed at a school in March partly due to difficult behaviour at home. We were referred to CAMHS complex behaviour clinic, in theory to discuss what would be possible to work towards him visiting home. We finally had an appointment recently, only to be told they couldn't offer help unless he was already home, and any support wouldn't kick in until at least a month to six weeks after that, assuming he didn't have to rejoin the waiting list at the bottom.... hmmm. 



#2 apricot

apricot

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 478 posts
  • Gender:Female
  • Location:Cambridge
  • Interests:Walking our labrador, Ben.

Posted 22 August 2016 - 12:03 PM

Sounds like they just want you to go away.

Does the school have a plan for getting him home? Can you get that written into his statement or EHCP, then you have a chance of getting it provided. It would have to be written as an educational provision e.g. learn to manage his emotions so that he can visit home safely.
 



#3 bluewater

bluewater

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 328 posts
  • Gender:Female
  • Location:Scotland
  • Interests:Outdoor activities

Posted 25 August 2016 - 02:51 PM

Thanks. The school are trying to get ds1 to engage with CAMHS at their end also. The csp (scottish equivalent of statement) hasn't moved with him, and they have drawn him up an IEP instead. I am wondering now whether we need to push for a csp as well again, but have to balance whether the energy that goes in is going to be worth it.



#4 bluewater

bluewater

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 328 posts
  • Gender:Female
  • Location:Scotland
  • Interests:Outdoor activities

Posted 18 January 2017 - 07:47 PM

Well, we are in a catch 22:

 

ds1 is LAC, but is at school out of the LA's area. At his last Childen's hearing, there was (finally) a requirement that ds1 see a clinical psychologist. But here is the thing: school's area CAMHS see no reason to see ds1 at the moment (not creating trouble so obviously no problems...), the LA's CAMHS won't see him because he's out of area. A compulsory supervision order condition is legally binding, but I have a feeling Social work will just let this run with a shrug of the shoulders. It amazes me how our SW replies to only some of our emails and stoically ignores others (including requests for updates on action taken to get Psychological assessment).



#5 imperfect parent

imperfect parent

    How many posts? Get a life!

  • ASDf Members
  • PipPipPipPipPip
  • 5,980 posts
  • Gender:Female
  • Interests:horse riding, reading, baking and SEN issues

Posted 22 January 2017 - 02:51 PM

Your experience is as poor as ours.  DS saw CAMHS out of county due to being in school, but they would provide no therapy due to being out of county while our own CAMHS wouldn't see him due to being out of county.  There is confusion as to when ASD is a learning disability, so a referral to adult mental health was refused by the LD mental health team for not meeting criteria, whilst not specifying the criteria not met, and not actually telling our son or us.  Finally seen by adult mental health team and they don't really know what to do so take 6 months to get him onto a waiting list for psychology input.  

 

If nothing else what I have learnt is that no one does anything unless made to, to make them you have to know what they should do, and even then if they hold out long enough they get away without doing things and there is no redress.



#6 bluewater

bluewater

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 328 posts
  • Gender:Female
  • Location:Scotland
  • Interests:Outdoor activities

Posted 24 January 2017 - 05:12 PM

It amazes me the loop holes that exist. I have found out through a support charity that our local CAMHS uses a private centre in another city for out of area assessments, yet neither the CAMHS workers we have met, nor our social worker seem to know anything about it...

#7 bluewater

bluewater

    Old as the hills

  • ASDf Members
  • PipPipPipPip
  • 328 posts
  • Gender:Female
  • Location:Scotland
  • Interests:Outdoor activities

Posted 15 February 2017 - 07:47 PM

Aaargghh. We have just been told yet again that CAMHS "can't" assess ds1 because he's "out of area". Both the school and ourselves thinks it is needed, and ds1 would benefit from assessment and input. It is also part of his supervision order. In addition, we know CAMHS does work out of area, working through other LA CAMHS. It is so frustrating.



#8 mad cat lady

mad cat lady

    How many posts? Get a life!

  • ASDf Members
  • PipPipPipPipPip
  • 1,461 posts
  • Gender:Female

Posted 15 February 2017 - 11:50 PM

IP - how did you get on the waiting list for adult mental health ? Our CAMHS have refused to refer J as he is not on any medication apart from bio-melatonin which is being stopped once he reaches 18 even though it is the only thing that helps him sleep.
I asked how a person who was only discharged from a tier 4 placement less than a year ago was not going to be monitored but was told that the GP will monitor.

#9 imperfect parent

imperfect parent

    How many posts? Get a life!

  • ASDf Members
  • PipPipPipPipPip
  • 5,980 posts
  • Gender:Female
  • Interests:horse riding, reading, baking and SEN issues

Posted 16 February 2017 - 07:30 AM

Aaargghh. We have just been told yet again that CAMHS "can't" assess ds1 because he's "out of area". Both the school and ourselves thinks it is needed, and ds1 would benefit from assessment and input. It is also part of his supervision order. In addition, we know CAMHS does work out of area, working through other LA CAMHS. It is so frustrating.

You need to get a referral via his GP.  As far as I can make out health is provided where the child is, but despite having GP and CAMHS at school our sons remained under the pediatrician at home.  Looking at your August post I think you have grounds to complain to the health board who have messed you around.  Unless you fight, they will just fob you off.

 

IP - how did you get on the waiting list for adult mental health ? Our CAMHS have refused to refer J as he is not on any medication apart from bio-melatonin which is being stopped once he reaches 18 even though it is the only thing that helps him sleep.
I asked how a person who was only discharged from a tier 4 placement less than a year ago was not going to be monitored but was told that the GP will monitor.

MCL, DS1 came home at 18 in an almost total shutdown and initial referrals to mental health by his social worker were turned down; that turned out to be because she referred to the Psychiatrist within the team she works in, but he only deals with those with ASD who also have LD.  That took months to sort out as he was rejected for not meeting unspecified criteria, and we were not told directly!  I think it was Young Minds who told us to ask for a medication review which was what got us seen.  Whoever the replacement medication is now not helping, and we have been unable to get another medication review, and whilst he is on the waiting list for psychotherapy it is with a team who do not specialise in ASD.  I am trying to get a referral to a specialist ASD CBT service, but our GP are saying it's impossible, although our other son's social worker tells me it has been done recently.  I think it all depends on the willingness of others to help.

 

Are you trying to get J seen at home, or in education?

 

We generally end up so exasperated that we try anything and everything, and then don't really know which action it is that eventually gets the results!






0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users