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Looking For Parents To Participate In Research On Personal Growth And Stress


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#1 smoresun

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Posted 08 June 2013 - 08:07 AM

Hello,

I am a postgraduate student at Swansea University in Wales. For my master’s dissertation, I am investigating the effect that receiving a child’s autism diagnosis can have on parents. I am looking at both personal growth and stress symptoms that occur after a child’s diagnosis and hope to identify the characteristics of the parents that lead to these experiences. Understanding how parents are affected is important as a parent’s mental health is often overlooked, yet can have a large impact on their family and lives. 

I am looking for mothers and fathers who have at least one child diagnosed with an autism spectrum disorder and would be willing to complete an anonymous 20-minute online survey. 

Please follow this link: psy.swansea.ac.uk/questionnaires/716144/ to find the information sheet, consent form, and questionnaire. Further information about the study is provided to the participants in a debrief form at the end of the questionnaire. If you have any questions, please contact me at 716144@swansea.ac.uk. I would be happy to provide anyone who participates a copy of the results at the end of the study. 

 

Your participation would be greatly appreciated. Thanks for your time and help!

Kind regards, 
Shannon


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#2 Kadenza

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Posted 08 June 2013 - 09:23 AM

Can I just ask - is it the effect of receiving the diagnosis that you are researching, or the effect of having a child with autism?

#3 smoresun

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Posted 12 June 2013 - 02:18 PM

Hi Under the table, 

 

It would have liked to have looked at both because I think the stress symptoms and personal growth that I am looking at come from different sources for different people. For some, it's the diagnosis, but for others there are other events in raising their child that contribute to them. In most people, I would guess it would be a combination. However, it was quite hard to create a survey that could capture that. So I chose to focus on the diagnosis and hope to extend this research later on to look at other factors. Also, my study is in part a replication of a pilot study that was done last year and they were focusing on the diagnosis so it made sense to do the same. 

 

My research was originally inspired by some posts by autism mom bloggers, posts of people talking about the anniversary of the diagnosis as D-day and that they had a hard time dealing with it. There was one post in particular that sparked my interest in looking in to the topic: http://adiaryofamom....011/04/07/ptsd/ 

The same blogger also talks about D-days here: http://adiaryofamom....12/03/28/d-day/

 

I hope that helps answer your question :) 



#4 Kadenza

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Posted 13 June 2013 - 07:02 AM

Thank you.

#5 smoresun

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Posted 19 October 2013 - 08:45 PM

Thanks so much to everyone who participated in my study. I've submitted my dissertation and my supervisor wants to publish the study. So a HUGE thanks to you all. 

In order to publish, we'd like to have a larger sample so I am looking for more participants. If you haven't already participate, please consider it! This research's aim is to help understand parent's experiences and the personal effect, positive and negative, that caring for a child with autism can have on a parent.

Thanks again!





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