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Wanted: Parents Of Children With Asd To Participate In Online Research For My Dissertation


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#1 J.Howse

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Posted 16 July 2013 - 08:48 AM

I am a third year psychology student at Swansea University. I am trying to find parents of children with ASD who can help me with my dissertation which examines parental views of challenging behaviour.

 

I have been interested in ASD for a long time and have family members with the condition. Seeing my parents look after a child with ASD has made me want to get involved with research to try to better understand ways to help support parents with the care of their child with ASD. 

 

If you are a parent with a child diagnosed with an autistic spectrum disorder (including Autism, Asperger's Syndrome, Pervasive Developmental Disorder, Rett Syndrome or Childhood Disintergrative Disorder) that is 18 years old or under, it would be greatly appreciated if you could spare a few minutes to complete this online questionnaire. 

 

To participate in this study, go to: http://psy.swansea.a...nnaires/700732/

 

If you have any queries, you can email me (Jessie Howse) at 700732@swansea.ac.uk 

 

 


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#2 Jolly Roger

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Posted 16 July 2013 - 08:50 AM

As well as being a parent of a child with autism & challenging behaviour, I'm a former SEN specialist teacher and worked for 8 years in a school for children with autism & challenging behaviour.

Is it going to skew your results if I take part?

#3 J.Howse

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Posted 16 July 2013 - 08:55 AM

Hi, 

 

No, im sure your experience of being a SEN specialist teacher will not effect my results. Thanks in advance for participating! I am finding it hard to get responses so i really appreciate your help! :) 


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#4 Jolly Roger

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Posted 16 July 2013 - 09:11 AM

No problem.

That's one of the more interesting questionnaires I've seen - and it reminds of stuff I have tried very hard to forget...

I'll put a link to this on the ASDf Facebook Group.

#5 Snickas

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Posted 16 July 2013 - 10:11 AM

done.

 

Very interesting questioner and very realistic. Last 3 videos made me very sad though :( but i do understand the relevance.



#6 J.Howse

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Posted 16 July 2013 - 10:18 AM

Hi Jolly Roger,

 

Thanks for all your help! I am glad you found my questionnaire interesting, it is one of the first in this field. If I get enough participants I am hoping that my research might lead to an article for publication and further research into how to support parents (which, in my opinion, is one of the most important aspects!)

 

Thanks again


Hi Snickas,

 

Thanks for helping me with my research. I agree, some of the videos are sad, that's why I chose to research this area because i hope more research will lead to greater understanding so we can help and support families in these situations. 

 

Thanks again!



#7 Jolly Roger

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Posted 16 July 2013 - 11:03 AM

f I get enough participants I am hoping that my research might lead to an article for publication and further research into how to support parents (which, in my opinion, is one of the most important aspects!)


Yes, yes YES!

Parents of very young children with severe autism and challenging behaviour desperately need more support - in my opinion, they need experienced key workers trained in early years behaviour management, communication skills like HANEN and PECS, sleep management and intervention, sensory processing disorders, and structure & sequencing.

I am convinced that home-based intervention by key workers for early diagnosed children aged 2-5 would massively improve outcomes for children with autism.

#8 imperfect parent

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Posted 16 July 2013 - 02:28 PM

 

f I get enough participants I am hoping that my research might lead to an article for publication and further research into how to support parents (which, in my opinion, is one of the most important aspects!)


Yes, yes YES!

Parents of very young children with severe autism and challenging behaviour desperately need more support - in my opinion, they need experienced key workers trained in early years behaviour management, communication skills like HANEN and PECS, sleep management and intervention, sensory processing disorders, and structure & sequencing.

I am convinced that home-based intervention by key workers for early diagnosed children aged 2-5 would massively improve outcomes for children with autism.

 

I agree.  But for us Autism was only raised as an explanation when DS was 4, and for the next 8 years we were told he wasn't severe enough to need any specialist support.. We were never the bad parents we were made out to be, and were blamed for behaviour which we had in fact managed far better than school.  If we'd had support from people with true knowledge of ASD it would have saved a lot of heartache


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#9 J.Howse

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Posted 16 July 2013 - 03:20 PM

I completely agree. My brother has ASD and in his early years was treated by others as just a "naughty" child. My parents were given no support. It would have been so much easier if others had understood what my brother, and parents, were going through. And I agree with Jolly Roger that the appropriate early intervention can make all the difference! 



#10 J.Howse

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Posted 21 July 2013 - 04:51 PM

A huge thank you to everyone who has already participated in my online research. (And for the great feedback i have received). I am in desperate need of a few more responses so if you have a few minutes spare it would be greatly appreciated if you could help out. Thanks again everyone! 



#11 Jolly Roger

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Posted 21 July 2013 - 09:31 PM

Hi - I've just posted it on our Facebook group again, as well as another Facebook group that includes parents of children with autism. I know one parent has already responded.

#12 J.Howse

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Posted 21 July 2013 - 10:30 PM

Thank you so much Jolly Roger, you have been a huge huge help! (I have already had 5 more responses! :) ) Your contribution is greatly appreciated! 


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#13 J.Howse

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Posted 03 September 2013 - 09:43 AM

Keep on participating everyone! Nearly at my target of 60 participants. Just need a few more people who are happy to help :) Thanks!


Edited by J.Howse, 03 September 2013 - 09:43 AM.


#14 Prosecco Queen

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Posted 03 September 2013 - 10:32 AM

I have filled it in.

#15 J.Howse

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Posted 03 September 2013 - 10:35 AM

Thank you very much!! Keep them coming everyone :) 





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