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Autism Diagnoses Could Be Reduced

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#1 imperfect parent

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Posted 27 May 2017 - 12:15 PM



Mixed thought on this.  We had 3 assessments of DS1 to gt his DX and 2 for DS2.  Without the DX they would not have had any education as they did not cope in mainstream.  


DS1 has suffered multiple and on going breakdowns due to a lack of support, it is only with hindsight that we have understood just how severe his autism is, and how hugely it impacts.  DS2 was in a similar position when first DXed, but the right support has meant success in his chosen career path. Supporting him is still hard work, but rewarding.


I would prefer better recognition and management  without  the need for a DX, but the reality is that even with a DX you struggle to get what the child/young person needs.


I've no problem with reducing diagnoses, my problem is with getting the right support, and we have frequently found that impossible even with a DX.  What do you think?

#2 bluewater


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Posted 27 May 2017 - 02:30 PM

I feel quite strongly about this. Ds1 showed difficult behaviour at home and with certain people from a young age. I thought our parenting must be wrong, and this was reinforced by anybody we dared to speak to about difficulties and his aggression (a lot of whom would tell us it was normal and their children did the same - we realised later that there was a whole degree of difference between ds1 and other children). He did well at primary school (40 pupils): bright, very articulate, and they never really accepted the dx (age 9).

He completely failed to cope in secondary, refused school and his aggression, domination and control of the home and family escalated from already bad with sibs to unbelievable levels of aggression, domination and control of the family and home.

He is now at a specialist residential school doing national exams. This is a child who had "mild" ASD, that many people didn't recognise.

Without dx he would probably have been left out of school, (he was out for a large part of 3 years until his placement last year) and his behaviour and domestic violence would have been dealt with inappropriately through other channels.

#3 queen claudia

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Posted 29 May 2017 - 04:49 PM

It's just a cost cutting exercise and totally disgraceful that's why I think!


If children do not get a diagnosis many will struggle in mainstream school's with NO support at all never mind the piffling amount they get at the moment.


Without a diagnosis it leaves parents with nothing to fight with. I feel desperately sorry for anyone who would end up in that position.

#4 tracky2


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Posted 09 June 2017 - 09:47 AM

Quite worried about this, for a family like ourselves who are struggling to gain support and are unsure of getting any dx unsure what this may mean for us.

L suffers anxiety aswell as we believe ASD but getting the correct support seems to be proving difficult, I was unsure at the start of this if I wanted a label put on my child but after 2 years off being unable to access the correct support within education I feel a dx might be the only way to be listened too.

I already fear that my son will not get his dx, we have a 2 year waiting list for assessment in our area and paedetrician has not decided of yet if this is the road L will be taking. And now this may mean that children like my son who try to fit in and mask lots of behaviour will not get the correct levels of understanding.

I am aware that all children have a right to equal learning and support but as you may know this does not happen without parents fighting on there behalf.

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