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Going Over To Pip From Dla Info Needed Please X


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#1 di30

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Posted 30 October 2016 - 12:42 AM

Hi everyone

 

It's been sometime since i posted but hope all are well x

 

My son will be 22 after Christmas, he has Aspergers Syndrome, Severe Anxiety, as well as a chronic health condition.

Now he is still currently on High Rate Care and Low Mobility of DLA and we know we can hear anytime of moving over to PIP.

 

I continue to be his Carer and his Appointee as he is not able to deal with his own affairs.

 

Since coming from CAMHS when he was 18, I was given contacts to the adult services, but he refused point blank to see anyone else, to be honest he has got more difficult and aggressive now he is older, his anxiety is awful for him and us seeing him like that too. On DLA the DWP received lots of evidence where he was awarded the above stated rated, luckily he never had to go to any medical or face to face on this or ESA where he is in the Support Group for this.

 

But my problem is when the time comes to claim for PIP will be the evidence. As we know there is no cure for ASD, but due to my son refusing to see anyone since leaving CAMHS I am worried about the lack of more current evidence to send. I am at the understanding you can request they use the evidence that the DLA akready hold, but then his last review was 3 years ago, so am not sure if they would or not accept this.

 

However, I can get lots of support letters from people that know him well like a teacher/head from a special needs unit for adults (my son never actually attended there but the family know my son very well) and others alike like Mentors for ASD etc, not sure if that will do.

 

But if anyone been in the same position with this, please can you tell me what you did? Did you request they use the current evidence and add what you can to it? Or other?

 

Thank you for any info/advice you can give me on this.



#2 apricot

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Posted 30 October 2016 - 11:53 AM

I have just gone through this with my 16 year old, we lost the mobility part but got PIP for 3 years. I had current evidence from CAMHS and his EHCP.

You have to write on the PIP form, there is no electronic version, so I made my own word document. Then wrote in the tiny PIP box 'see attached word document page 2, paragraph 13, plus EHCP page 14, para 3 etc etc. 

They should accept the ASD diagnosis letter even if it is years old.

Assume they will lose the DLA evidence during the move to PIP, so resend any relevant reports with the PIP application.
You will need to score maximum points for Q11 - Mixing with Other People, so any recent letters you can get saying your son is too anxious to engage / talk / make contact will help to score points in this section. Also remember to be explicit. 

e.g. A normal 22 year old should be able to make a phone call - tell them what happens with your son.

Could be: Panic attacks/ takes 2-3 hours to pluck up courage to make a call / can never make a call / can never answer the phone. 

If there is a risk of suicide/previous history of self-harm make sure you state that.

We didn't have a face-to-face assessment, the decision was made on the supplied paperwork .


Edited by apricot, 30 October 2016 - 11:54 AM.

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#3 di30

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Posted 30 October 2016 - 02:09 PM

I have just gone through this with my 16 year old, we lost the mobility part but got PIP for 3 years. I had current evidence from CAMHS and his EHCP.

You have to write on the PIP form, there is no electronic version, so I made my own word document. Then wrote in the tiny PIP box 'see attached word document page 2, paragraph 13, plus EHCP page 14, para 3 etc etc. 

They should accept the ASD diagnosis letter even if it is years old.

Assume they will lose the DLA evidence during the move to PIP, so resend any relevant reports with the PIP application.
You will need to score maximum points for Q11 - Mixing with Other People, so any recent letters you can get saying your son is too anxious to engage / talk / make contact will help to score points in this section. Also remember to be explicit. 

e.g. A normal 22 year old should be able to make a phone call - tell them what happens with your son.

Could be: Panic attacks/ takes 2-3 hours to pluck up courage to make a call / can never make a call / can never answer the phone. 

If there is a risk of suicide/previous history of self-harm make sure you state that.

We didn't have a face-to-face assessment, the decision was made on the supplied paperwork .

This is really helpful thank you so much, and am am glad its sorted for your son. I have kept all the original evidence of his diagnosis and of other specialists etc which also state of his severe anxiety and cannot do anything for himself, he will not even answer the door of the phone, he runs up the stairs to his room and when we have visitors as he cannot cope with that. I hate saying this about my son but it is very true that he can get aggressive when he is anxious, it does come to the point he literally got his hands round my throat squeezing my neck. I have had to hide sharp things like knives, tools as well. So do i tell them all that as well? So glad you never had to attend a face to face, so far my son have not been invited to any and am dreading it if they do invite him this time, he will go haywire, even if its done at home, even our Dr's surgery allow me to act for him now as he will not go to the dr's and i have to deal with everything on the phone, but the times that we did manage to get him there, the receptionist had to sort something so that he is not waiting about and straight in because of too many people in the waiting area. Thanks again x



#4 apricot

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Posted 30 October 2016 - 03:33 PM

If you can not rely on him being able to control his behaviour under stress at an assessment centre then you have to say so. If he does flip out and hurt another claimant you would feel awful.

You could say something like

You hope you have provided enough information so that a face-to-face interview is not necessary. You will attend with him and act as advocate for him but you can not guarantee his behaviour or co-operation. He can become aggressive when highly anxious and you have an arrangement with the GP's surgery to allow him instant access to the GP with no waiting time to keep him calm and others safe. As he hides from visitors he is unlikely to talk to an assessor at a home visit.

And then get a letter from your GP/receptionist to back this up. 

Not being able to answer the phone or the door, hiding from visitors, making special arrangements to visit GP, those are all the sorts of details you need to include.


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#5 di30

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Posted 30 October 2016 - 04:08 PM

If you can not rely on him being able to control his behaviour under stress at an assessment centre then you have to say so. If he does flip out and hurt another claimant you would feel awful.

You could say something like

You hope you have provided enough information so that a face-to-face interview is not necessary. You will attend with him and act as advocate for him but you can not guarantee his behaviour or co-operation. He can become aggressive when highly anxious and you have an arrangement with the GP's surgery to allow him instant access to the GP with no waiting time to keep him calm and others safe. As he hides from visitors he is unlikely to talk to an assessor at a home visit.

And then get a letter from your GP/receptionist to back this up. 

Not being able to answer the phone or the door, hiding from visitors, making special arrangements to visit GP, those are all the sorts of details you need to include.

Amazing thank you again for all your help. We've not heard anything from DWP as yet about PIP but know this will be anytime, so want to be well prepared, excellent info you have given me, thank you so so much x



#6 imperfect parent

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Posted 01 November 2016 - 03:35 PM

We had a face to face interview at home, and the person who came was fantastic. They recognised that it was his communication with others which was the major barrier to deling with things and suggested to him that he would need an appointee.  It was so easy to talk to her as she didn't question anything I said, simply understood and clarified what it would mean to him in life.  Not often something like this goes so well.


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#7 di30

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Posted 02 November 2016 - 10:00 PM

We had a face to face interview at home, and the person who came was fantastic. They recognised that it was his communication with others which was the major barrier to deling with things and suggested to him that he would need an appointee.  It was so easy to talk to her as she didn't question anything I said, simply understood and clarified what it would mean to him in life.  Not often something like this goes so well.

That is good to know. When my son turned 16, i remember the DWP lady who came to the house to sort out the appointee matter was lovely and so understanding, even tho my son never stayed in the same room after his bit was done on agreeing with me being appointee, before he left to go upstairs he suddenly said to her "i like you" lol llol, then went she laughed and said i like you too lol, but she was really good and understanding. Its since the years have gone by his anxiety worsened, and gets very uptight even when the door knocks, not easy takes ages for him to settle back down. Thank you for that anyway x



#8 Jeanne

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Posted 07 November 2016 - 06:40 AM

I am having to apply for PIP because I need the higher rate or enhanced as it's called so that my son is entitled to a mobility vehicle as he is going into independent living in the near future, he is currently in a mental health hospital, and his social worker has said he will need a vehicle otherwise he won't be going out for drives.  I tried calling PIP but was told to call DLA who told me they will contact PIP who will then send me a letter instructing me to call them, isn't this a ridiculous system? 






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