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Discharged Again!


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#1 Ymum

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Posted 06 March 2015 - 01:22 PM

We were referred to OT when DS was 2 by the health team we were seen once and discharged on the basis he is medically well and has no physical disability, even though he does but because he can walk they don't care.

 

We self referred to the children's disability team for a housing needs assessment as we live in a town house and his room and the bathroom are on the top floor and his hyper mobility means he finds the stairs very tiring and his autism and global delay mean he can be incredibly unpredictable. 

 

The OT came out and met with just me as she said for a screening visit she wouldn't need to meet my son, from the screening visit she wrote a housing needs assessment and a pretty good one considering she's never laid eyes on him.

 

Now I got a letter today saying we were being discharged if we were offered a house we would have to phone them to re refer ourselves back to the service so they could assess the house.  It just seems really crazy they say he has no other needs despite being quite a challenging young man who has 2 to 1 at school when he isn't coping and he's only 4.

 

It seems like in this area if your only diagnosis is ASD and GDD they can't believe you might need equipment or support.



#2 Snickas

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Posted 06 March 2015 - 03:14 PM

Sadly this is similar to a lot of areas these days

Due to NHS cuts, most departments are now working with only skeleton/key staff.

#3 maximus prime

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Posted 06 March 2015 - 04:12 PM

It's exactly the same here, autism doesn't count unless it has a co morbid that is considered a disability so SLD/ Downs/CP etc

 

Autism without significant learning difficulties or if the child attends a mainstream school even with full time support will mean that it will be considered that your child doesn't have a significant disability.

 

We were in the ridiculous position where we were really struggling with Jack as he fell apart in the autism unit and were not considered to be in need of support. He moved to a specialist school and as a result all needs went yet purely being in the specialist school gave him entitlement as a child with a disability.  



#4 Ymum

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Posted 06 March 2015 - 05:17 PM

He's got severe delay all his assessments and observations at school put him at 8-20 months and he's 55 months. He's in a school for severe and complex needs with full time one to one two to one when he's being a monster so I'm really at a loss as to why they think at home I don't need any help.



#5 Eggman

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Posted 08 March 2015 - 11:48 AM

Is it the OT that has discharged him?

 

I'm just wondering if you would be able to get round this be getting a private OT report done.

 

We had something sort of similar in that the NHS refused to give LE any OT support as his Primary diagnosis was autism even though he had a co-morbid diagnosis of DCD.

 

We went private and the LEA were forced to employ her services as we could prove he had severe difficulties and the NHS were refusing to help. The LEA spent over 12 months mind trying to force their hand but NHS refused to back down.






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