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Anyone On Here Have Knee Problems?


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#1 Eggman

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Posted 01 March 2016 - 12:54 PM

Hi there.

 

I've had problems with my left knee since I fell on a treadmill about 20 years ago. Anyway the last 12 months it has got much worse with very bad pain and stiffness.

 

I jog which I haven't been able to do for the past month and love walking hiking etc again which I haven't been able to do. I don't drive and rely on walking/public transport to get about which has been difficult this past month because of the pain.

 

I was referred for an x-ray by my GP and went back to see her this morning for results. I felt pretty much I was being rushed and she was forever looking at her watch. I was basically told maybe in 10 years time I would need a knee replacement and that was it!

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I pushed her and she printed off the Consultants report which I read when I got home. The main points are below:

 

There is quite severe OA (osteoarthritis) involving the medial joint compartment with chondrocalcinosis.

 

Moderate OA is seen involving the patellofemoral joint and to a lesser extent the lateral joint compartment.

 

Calcified body is seen within the posterior aspect of the knee and these may reside in a large popliteal cyst.

 

Now NO discussion was given to me by the GP on any of the above points. I did quickly google the first point which indicated that I should be offered a knee replacement.

 

I really do feel let down and very unhappy and confused. I guess most people would just accept their GP advice but because of what I have been through with LE I know what it is like to be fobbed off and I don't want to end up a cripple because I have blindly put my trust in the GP.

 

On a longshot anyone have any thoughts or advice on this?

 

Many thanks!

 



#2 Ymum

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Posted 01 March 2016 - 02:19 PM

If you have a consultants report is there any way of contacting the consultant for an appointment at least that way you'd be speaking to somebody that knew what they were talking about.


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#3 mad cat lady

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Posted 02 March 2016 - 09:44 AM

A couple of years ago my GP told me that people have no idea what is being done to the NHS , he told me that now whenever a GP puts forward a patient for any surgery it has to go to panel and that the biggest change for example is that varicose veins would not qualify as even though it would effect quality of life it is not life threatening,
I think the only way is to treat it as you would a fight with the LEA , continue to complain , I would start by asking for a second opinion as to why you are being kept waiting as it sounds like you need the op now.
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#4 Eggman

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Posted 02 March 2016 - 10:45 AM

Thank you both so much you have spurred me into action lol. I telephone surgery this morning to ask for a referral to see a specialist.

 

MCL, that is exactly how I am approaching it like a fight with the LEA!

 

I did ring the hospital yesterday to try and speak to the Consultant who wrote the report ( knew they wouldn't let me but hoped this may cause some sort of reaction) and it transpired that they did ring the Surgery to tell them I was not happy because I got a call from Surgery about 10 mins ago!

 

The lady who telephoned me was from their complaints section and she told me I should not have been given a medical report without it being fully explained to me and that the GP I saw yesterday was not a permanent member of their staff.

 

I told her I was extremely anxious and confused and really wanted to push for a referral. She said she is going to have a word with GP about referral and also about the GP as it needs to be explained to her that she must discuss fully any implications from a medical report and not just dish it out!

 

I'm so relieved I put this post on here as I could quite easily have left it and not bothered. It took me a long time to motivate myself to go and see the GP in the first instance and only to be fobbed off!



#5 apricot

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Posted 02 March 2016 - 10:59 AM

Well done for following up. At the least you should have had a proper discussion so you could make an informed decision. Replacement knees only last 15-20 years so they try not to operate on younger people, which I would guess is why she said 'about 10 years'. But there are other things they can do short of replacement, and just sending you away to carry on is very poor practice. If you are putting most of your weight through the other knee/hip you will end up with problems on both sides. I would ask for referral to a physio, get some exercises and advice on mobility aids like a stick or crutch to minimize the impact on the 'good' side.


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#6 imperfect parent

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Posted 02 March 2016 - 03:10 PM

Physio can make a huge difference to knee problems, and strengthening exercises can be really simple and easy to repeat  during the day.  Jogging is hard on knees.

 

I had physio a few years ago, and had positive results in weeks from simple exercises done standing.

 

It won't change the fact that you are likely to need a replacement knee in the future, but it should make you more mobile in the intererim.

 

If you do need surgery do your research and find out which hospital is best.(advice from a nursing friend)



#7 Eggman

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Posted 03 March 2016 - 04:20 PM

Apricot thanks. I'm not sure about waiting for 10 years it seems an awful long time particularly given the severity of my knee at the moment plus I can feel I am putting pressure on my other knee/leg and as you say I worry I will end up with problems with both knees if I don't get it sorted now.

 

Saying that the last thing I want to do is have another major operation. I only had a total abdominal hysterectomy in June which I am still recovering from.

 

IP, thanks for that as it's very pertinent now as I had a call from Surgery and they have agreed to refer me to a specialist. Apparently they will type a letter out which I collect and then arrange the appointment myself online.

 

I imagine I 'may' have a choice of hospitals so do you have any idea where I can find which hospital would be the best?



#8 imperfect parent

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Posted 04 March 2016 - 10:37 AM

I don't know, but we will ask our friend and find out how to work out the best hospital.

 

When I had my second C section recovery was quicker and I could lie flat almost immediately; something I never managed after the first, and my midwife explained that it recovery varies according to how well stitching is done.  I'm just glad that I had the better Dr the second time.


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#9 Eggman

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Posted 04 March 2016 - 12:45 PM

IP, thanks.

 

Apparently I have a choice of hospital including some private ones although not sure if going to a private hospital would be better. Imagine they do less knee replacements so possibly have less experience than the larger hospitals.

 

Mmmm ..... difficult choice!

 

I might not need a replacement but I guess it's best to assume I do.



#10 imperfect parent

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Posted 05 March 2016 - 03:20 PM

As Dh is always saying "plan for the worst, hope the best".
If you are prepared for a replacement that should cover off the worst.
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#11 Eggman

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Posted 06 March 2016 - 06:31 PM

Think I've decided to just go with the local hospital instead of any of the private clinics.

 

It's easy for me to get to as I don't drive and if my knee is playing up I don't want to be having difficulty getting there.

 

I think I will discuss the possibility of maybe for a start getting rid of the cyst that is at the back of my knee as it feels very uncomfortable. I suppose I'm hoping for a smaller operation rather then a whole knee replacement. The idea of having a metal knee doesn't appeal to me!


Edited by Eggman, 06 March 2016 - 06:31 PM.


#12 tracky2

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Posted 07 March 2016 - 03:33 PM

My mother also has problems with her knees, although she has ligament damage and has had to have this repaired by an operation whilst hey were in removing her cartlidge, she also suffers fluid on the knee. Physio is helping a great deal, she says it is relieving the pain and fluid build up.

My sister in law suffers arthritis and has been told she may eventually need a knee replacement, she receives cortisol injections and physio at the moment and this helps. X

#13 Eggman

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Posted 08 March 2016 - 01:53 PM

Tracky, thanks.

 

I've got a Physio appointment next Thursday and they are going to assess me. I've also got a hospital appointment with a specialist in April.

 

Decided to have a walk to the shop before as have been pretty housebound the last couple of weeks. It's about a 40 minute round trip and my knee was very painful when I got back home again. I felt exhausted and had to go and have a lie-down for a few minutes!

 

The Naproxen helps but I hate taking it as it does upset my stomach and I don't like the idea of taking tablets anyway. Injections sound interesting will ask about that and hopefully the physio will make a difference as you say.



#14 tracky2

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Posted 09 March 2016 - 08:12 AM

There's nothing worse than being in pain, especially when you have so many other things to try and carry on with.

I hope the specialist brings something else to the table for you to think about. Knee replacements are so final and don't have a forever life span, well from what I have heard.

I think the injections ease for a little while and when it becomes uncomfortable with swelling etc she uses hot and cold compresses.

Rest where you can, good luck with the specialist x
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#15 imperfect parent

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Posted 09 March 2016 - 10:19 AM

I've had unspecified problems with my knees for years, generally just achy, progressing over many years to keeping me awake at night.  When I started driving long distances when DS went to residential school I really struggled.  Some days I couldn't walk on uneven ground at all, and on really bad days in the house I found that wearing one shoe with slight heel helped.  I discovered that when someone called as I was putting shoes on.  Although I remember the physio, and how well and quickly it worked I had forgotten the struggle in the weeks before the  physio.

 

Now if my knees trouble me I just start the exercises again.

 

Take the Naproxen after food, or at the very least with a glass of milk.  Take them before you want to do the walk, and after, not just after to eliminate the pain. 

 

The only time my knees really bother me at the moment is cycling.






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