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Ados Assessment


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#1 colmsmommy

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Posted 23 May 2009 - 08:34 AM

Hi everyone, my little man Colm has his ADOS assessment on 4th June, and was just wondering how long it all takes, and what will happen? He has had quite a few tests already, but not sure what they were called, I am new to all of this, so don't know exactly what the tests were called ;0)
He had to answer lots of questions, and copy patterns using little wooden blocks, which he had trouble with.
He also had to perform some physical activities, and they told me that his balance and co-ordination is not what you would expect from a nearly 6 year old. They also told me that his intelligence was on a par with 8 years plus.
Hope to hear from you soon,
Best wishes,
Shell xxx

#2 pipistrelle

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Posted 23 May 2009 - 07:21 PM

Sounds a bit like the Ruth Griffiths test. A general development test.

Never had an ADOS test but I'm sure others have and will advise :)

A x

Edited by pipistrelle, 23 May 2009 - 07:21 PM.


#3 Serenity2

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Posted 24 May 2009 - 12:54 AM

Hi :hugs2:

Just wanted to say welcome to the forum

Love

Hally xx :D

#4 Steph

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Posted 24 May 2009 - 02:21 PM

Hiya :) Caleb just had the ADOS a few weeks ago. It took about 45 minutes for them to assess him and another hour to meet with me afterwards and explain everything, but if they don't have a final dx to give you, they might not do that, or they might make another appointment for another time to discuss the results.

There are 3 levels of the ADOS. Level 1 is for no-verbal kids mostly, level two is for kids who don't have the verbal capacity to be assessed away from their parents, Caleb had level 3 because he can speak relatively well, and that meant he went in alone (without me or his dad).

They basically have a check-list and write down what your child can/can't do, any odd physical behaviour and eye contact stuff, and wat they seem to understand as far as relationships, questions, conversations, etc. Its all play from the kid's point of view though!

Good luck, I'm sure it'll be fine, hope you get the answers you are looking for :)

Edit to add: Definately sounds like RGA (Ruth Griffiths Assessment), most kids get that to weed out physical, psychological, neurological, behavioural issues so you get sent to the correct specialist or paed.

Edited by Steph, 24 May 2009 - 02:23 PM.


#5 colmsmommy

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Posted 25 May 2009 - 11:41 AM

Thanks very much everyone for the replies. I will let you know how Colm gets on.
Best wishes,
Shell xx

#6 colmsmommy

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Posted 05 June 2009 - 07:52 PM

Well, hope everyone is ok. Colm had his ADOS yesterday. They video taped it, and I was present in the room, sitting with Colm's physclogist, whilst someone else carried out the test. I was really pleased and proud of Colm, and thought that he done great. The physcologist talked to me all the way through, and said that a significant amount of autism was showing. We get the official dx on 30th June. It was great to have her there explaining why Colm was doing what he was, such as having the need to get up and spin around every few minutes. He does this at home all of the time, and at school.
He did not do so well on the emotions stuff, and could not tell the story from the cards without help.
The physcologist has said that he definately needs to be referred to OT, for sensory, sleep and food issues. Also, she actually thinks that he has signs of ADHD showing too, has anyone else had this? His half sister has ADHD and AS, so there is a strong link there, which they agreed with.
Hope to hear from you soon,
Shell xx :)

#7 Steph

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Posted 06 June 2009 - 05:07 PM

Hey congrats on the verbal dx, I hope it comes as a relief to you when you become more used to the idea. Well done for surviving the assessment :)

#8 colmsmommy

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Posted 06 June 2009 - 07:06 PM

Hey congrats on the verbal dx, I hope it comes as a relief to you when you become more used to the idea. Well done for surviving the assessment :)

Hi Steph, many thanks for your well wishes. The whole assessment process for Colm has been done in a matter of months, and has only taken since February. This was a big relief for us! The Autism team explained that they wanted it all to happen asap, as once Colm turns 6, then he would have to wait almost 18 months even before he got an appointment. The whole process has been intense, but very professional, and they have been very understanding, and considerate. The only down side is that, after the official dx, then that is it. Unfortunately, there is no long term follow up care here from the centre that Colm has been assessed at. They are talking of referring him to a paed for the possible adhd.
His ADOS test was carried out by his specialised health visitor, whom he likes and trusts, so I was initially worried that he would act "normal", if you know what I mean, as he is so used to her, and relates much better to adults. It was amazing at how many autistic traits were showing themselves, as Colm is Colm to me! ;0) I was not given the official score of the test, that will happen at the official dx meeting in a few weeks. I am just glad it is all over, especially for him. The physcologist wants to get in touch with school about his IEP, and was not happy that he is not on School Action Plus. She was futher maddenend by the fact that a couple of months ago, Colm was made to miss his playtime, because in assembly, which he finds very uncomfortable, the deputy head did not like him fidgeting! :angry: She now wants him to have the option of choosing if he wants to attend assembly, and the chance of having a break from class every half hour, so he can run, spin, whatever he needs to do. I would love to see the Deputy's face! This is the one man who, when Colm had a major meltdown in nursery last year (because his teacher had been away for 6 weeks with a broken leg, came back as a "surprise", which Colm could not deal with), could not restrain him, and has, in my opinion, had it in for him since. He is only nice to him due to Colm's gifted status at the school.
Ah well, I only hope that they will sort out his education. He was not coping at all until recently, but his teacher has bee fantastic, and very open to suggestion about his learning. He is not accepting that he will be moving class soon, but I am trying to get him used to the changes, but I guess that's a difficulty we all face with our loved ones.
Take care, and many thanks again,
Shell xxx :D




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