J's Beighton Scale score was 11, as he has it in his ankles, knees, hips, fingers, wrist, elbow. On this page: http://hypermobility...brighton-score/ (i always use hypermobility.org for info) it says Scale 3 is minor so I can imagine she still finds it a bit painful (do you know which joints she suffers with it mostly?).
The pain scales with hypermobility and autism can be a bit dicey at the best of times...some of our kids don't have the same pain receptors as some/most NT's. Others can be oversensitive IYKWIM, every child is different.
In J's sense, he rarely ever says hes sore BUT he can only actually walk about 10 to 20yards pain-free. After that, hes all over the place, shuffling his weight on one hip to the other, hobbling, etc. I will say to him "are you sore hunnie?" and he always says "am ok mummy" because he strives to be able to do more. Its so hard to watch because you can see the pain in him physically (his face goes pale, goes fatigued, etc). We have to use a wheelchair with J, as i say, we can only get, at most, 20yards pain free. And then we can't sit still for too long as thats equally painful for him because his joints get stiff.
He see's physio, but she helped advised some exercises for his hip joints and sorts insoles out for his shoes (as hes flat footed as well, with a high instep), but, frustratingly does little else to ease his discomfort
Paed additionally diagnosed him with joint pain and fatigue in relation to hypermobility, so other people are aware its quite bad with J. We did think he had child arthiritis this time last year, but blood tests came back clear, so paed insisted on going the route he went.
We've found microwave wheat packs an absolute godsend with J. Especially last thing at night (settling him in bed to sleep) and waking him up (as hes most stiff and sore then), otherwise it takes us about 20-30mins to get him up and down the stairs. And we use a teddy wheat pack for his fingers, arms, elbow and shoulders (giving bunny big hugs).
Doe she suffer with it a great deal??? Does she verbalise her discomfort?
There is now a forum on hypermobility.org that may be of some help for you? here: http://www.hypermobi...forum/index.php
they may be able to give a bit more advice, not sure as I've only just discovered they've finally got it up and running
Edited by Snickas, 28 February 2013 - 01:44 PM.